A Whole-Person Function Dictionary for the Mobility, Self-Care and Domestic Life Domains: a Seedset Expansion Approach

Proceedings of the 13th Conference on Language Resources and Evaluation (LREC 2022), pages 2850–2855 Marseille, 20-25 June 2022 © European Language Resources Association (ELRA), licensed under CC-BY-NC-4.0 2850 A Whole-Person Function Dictionary for the Mobility, Self-Care and Domestic Life Domains: a Seedset Expansion Approach Ayah Zirikly1,2 Bart Desmet1 Julia Porcino1 Jonathan Camacho Maldonado1* Pei-Shu Ho1* Rafael Jimenez Silva1* Maryanne Sacco1* [1] Rehabilitation Medicine Dept., Clinical Center, National Institutes of Health Bethesda, MD [2] Department of Computer Science, Johns Hopkins University Baltimore, MD {ayah.zirikly, bart.desmet, julia.porcino, jonathan.camacho, pei-shu.ho, rafael.jimenezsilva, maryanne.sacco}@nih.gov Abstract Whole-person functional limitations in the areas of mobility, self-care and domestic life affect a majority of individuals with disabilities. Detecting, recording and monitoring such limitations would benefit those individuals, as well as research on whole-person function and general public health. Dictionaries of linguistic expressions related to whole-person function would enable automated identification and extraction of relevant information. However, no such resources currently exist, due in part to a lack of standardized coding and their availability mainly in free text clinical notes. In this paper, we introduce dictionaries of whole-person function in the domains of mobility, self-care and domestic life, built and evaluated using a small set of manually annotated clinical notes, which provided a seedset that was expanded using a mix of lexical and deep learning approaches. Keywords: disability, terminology, terminology expansion, whole-person function, mobility, self-care 1. Introduction Functional limitations affect a large proportion of the world’s population, and it is estimated that over 1 bil- lion people (WHO, 2011) live with some form of dis- ability. In Europe, about 135 million people live with disability 1, and the community of people with disabil- ity in the United States is 61 million large (Centers for Disease Control and Prevention, 2020). Social insur- ance and security organizations, such as the Social Se- curity Administration (SSA) in the United States, aim to support this population, for example by providing financial aid in the form of disability benefits. Given the scale of the problem, such organizations need to allocate considerable and rising resources, both finan- cial and in terms of personnel, to review disability ap- plications and provide an eligibility decision. These responsibilities are even more challenging when there are no diagnosis codes associated with an applicant’s medical evidence. As an example, a claim for a per- son who suffers from impairments due to cancer would usually be coded using the International Classification of Diseases (ICD), which eases the eligibility determi- nation process. However, disability benefits can also be granted on the basis of whole-person function lim- itations which cannot be attributed to a single medical diagnosis. Whole-person functioning is assessed at the * Equal contribution 1https://www.euro.who.int/en/health-topics/Life- stages/disability-and-rehabilitation/data-and-statistics/facts- on-disability activity and participation level and represents a transac- tive process of interactions between a person, their en- vironment, and the nature and demands of the activities that the person wants to do, needs to do, or is expected to do to fulfill one’s roles. Deciding cases at the whole- person level is more challenging, …

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